06 Jun Innovation Digest – June 2023 Vol. 1

Throughout my career, I’ve championed the perspectives and the voice of real people – patients and families that confront complex and foreign systems that, at times, seem to be set up for the benefit of every other actor but them. The NIH study was an eye-opening and infuriating read as I reflect on my past year of conversation and learning with thought leaders and community leaders about health equity. Not only do we continue to accept inequity in our design and delivery of health care, that neglect has both a health and an economic impact that is disproportionately holding back communities of color and those with disabilities. The resources exist to identify what matters to those individuals and communities, and to prioritize those things in the design and delivery of care. Those in government and at the highest level of purchaser power have an obligation to prioritize the expertise of lived experience and to empower those voices to sit at the C-suite table to educate and hold all of us accountable to take the right action. Until the money is directed toward what matters to the patient, we can’t have equity or value.

In this issue:

• Patient Engagement & Experience Data: Missing Ingredients For CMS’ Successful IRA Implementation
• NIH-funded study highlights the financial toll of health disparities in the United States
• The DeSci Movement: Will Crypto Really Solve Science’s Biggest Problems?
• Moving From Incremental To Transformational Strategies To Address Health-Related Social Needs
• Health Equity and Decentralized Trials